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Find Your Local Association

There are hundreds of Down Syndrome support organizations around the world.
Click on the map, below to find the one nearest you:
Down Syndrome Support Organizations - Map

Download Domestic Associations in PDF Format

Local Down Syndrome Organizations by State: Redirects to the Global Down Syndrome Foundation

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Down Syndrome Nation on Twitter

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Down Syndrome Nation
DSyndromeNationDown Syndrome Nation@DSyndromeNation·
12 Dec

Juliette gifted these sweet wooden ornaments to her grandparents a few Christmas’ back. To say they are proud to show their unconditional love for her with the world is an understatement. P.S. We want to brag on Grammie, Yes ladies, she did her own nails! #madskills @SWesterman

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
27 Nov

Shop Small Business Saturday at these fine Down Syndrome Inspired business. Thank you in advance. @Dreamers_Merch @PoppinJoes

https://downsyndromenation.com/holiday-shopping-guide-down-syndrome-inspired-businesses/

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
25 Nov

Happy Thanksgiving with love from Down Syndrome Nation! May your day be joyful and full of blessings!

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
15 Nov

Our kids are amazing! Don’t count them out!

#wouldntchangeathing@Wouldntchangea1

This week is World Nursery Rhyme Week!
What better way to kick the week off then, than with a little throwback to this video we shared last year of Chloe giving us her take on the ‘Jack and Jill’ story….

#WorldNurseryRhymeWeek #DownSyndrome #WouldntChangeAThing

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
10 Oct

👉🏻Check out our new online story on Etsy! We love to show our support and advocate for all people with #downsyndrome. Thank you for your support and wear your cause proudly.
💙💛 Shop here: https://etsy.me/3CIixYm

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
2 Oct

Happy #DownSyndromeAwarenessMonth
Today we stress the importance of #earlyintervention and giving our kids PT, OT and speech therapy early to help them thrive (although Jules had other plans 😉).

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
21 Sep

DONATE for a chance to WIN!

💎We are raffling off a beautiful 10k gold #Trisomy21 necklace with genuine blue topaz stones in support of the @DSAJacksonville and Juliette’s Jewels Buddy Walk Team!💎

👉🏻Donate: https://dsaj.donordrive.com/team/6055
@svwesterman #GiveBack

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
23 Aug

Aiming to support businesses run by people with #differences! Tune in tonight to get inspired and take action on how you or your company can #dogood @svwesterman

National DS Congress@NDSC

Tune into TONIGHT to @PeacockTV in the US & @Cravecanada to watch the new series #BornForBusiness. Meet 4 #Entrepreneurs with #disabilities who are changing the world, including Collette Divitto of @ColletteysCookies, a baker with #Downsyndrome.
https://youtu.be/GIX8GFu1SOg

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
29 Jul

📚Reading is fundamental! Juliette and Hudson love @bradmeltzer I AM book series. Grab your kiddo it’s story time 7/30 at 12p EST. 👇🏼👇🏼👇🏼

Brad Meltzer@bradmeltzer

I scheduled this post before my social media hiatus! Watch the premiere of the I AM @AlbertEinstein. Storytime on the @PBSKIDS Facebook page or YouTube channel on Friday, July 30 at 12 p.m. ET! @chriseliopoulos

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DSyndromeNationDown Syndrome Nation@DSyndromeNation·
8 Jul

We are fans! Check out http://dsc2u.org (Downsyndrome Clinic to You) in partnership with @mghfc @harvardmed.

Brian Skotko@brianskotko

Not sure how to talk to your child with #Downsyndrome about puberty or their sexual development? You can find personalized recommendations for how to approach this best through DSC2U. Simply go to http://dsc2u.org to receive customized suggestions instantly.

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Recent Updates

  • 5 ‘Compliments’ You Need To Stop Making About Children With Down Syndrome
  • A Progress Report
  • 21 Things You May Not Know About Down Syndrome
  • The Stare
  • Life on “The Scenic Route”

Essential Resources

Books / PDFs

  • Babies with Down Syndrome: A New Parents’ Guide
  • A Parent’s Guide to Down Syndrome: Toward a Brighter Future
  • Down Syndrome World Magazine
  • Health Supervision for Children With Down Syndrome (pdf)
  • Early Communication Skills for Children With Down Syndrome: A Guide for Parents and Professionals
  • Gross Motor Skills in Children With Down Syndrome: A Guide for Parents and Professionals
  • Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals
  • Common Threads: Celebrating Life with Down Syndrome

Down Syndrome Defined

  • Down Syndrome Defined - Genetics Home Reference
  • NDSC - Down Syndrome Brochure (pdf)
  • Boston Childrens' Hospital Down Syndrome Page
  • CDC - Facts About Down Syndrome
  • Cleveland Clinic - Down Syndrome Defined
  • Mayo Clinic - Down Syndrome Defined

For New Parents

  • CDSS - New Parent Package (pdf)
  • NDSC - Now What?
  • NDSS - Where Should I Go From Here
  • How to Raise a Child With Down Syndrome (Parents.com)

Career

  • The Job Accommodation Network
  • Businesses Owned by People with Down Syndrome
  • The value that employees with Down syndrome can add to organizations - Mckinsey

Personal Stories

  • Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives
  • Count Us In: Growing Up with Down Syndrome
  • Common Threads: Celebrating Life with Down Syndrome
  • Life As We Know It: A Father, a Family, and an Exceptional Child
  • Madeline Stuart - Supermodel
  • Bitty & Beau's

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