Clinical Guideline
Practice Guidelines for Communicating a Prenatal or Postnatal Diagnosis of Down Syndrome
From Journal of Genetic Counseling (NSGC) · Published 2011
The National Society of Genetic Counselors’ guideline on how to share a Down syndrome diagnosis with families, before or after birth.
What it covers
- Summarizes the genetic causes of Down syndrome and the chance of it happening again.
- Reviews the key parts of a good disclosure conversation in prenatal and newborn settings.
- Recommends offering families up-to-date written materials and contacts for parent support groups.
- Published by Sheets and colleagues in the Journal of Genetic Counseling (2011).
- For:
- Clinicians
- Life stage:
- Prenatal, Early Childhood
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