Pick a life stage and who the information is for. You will see only the resources that match.
Every resource comes from a trusted organization, like the CDC, the American Academy of Pediatrics, or a national Down syndrome group. We give you a short summary and a link to the original.
Results update as soon as you tick a box. You can choose more than one.
37 resources found. Showing 1 to 6.
Guide
A gentle starting point for expectant and new parents: what the tests mean, how a diagnosis is confirmed, and where to find support.
Toolkit
A free New Parent Packet, a prenatal and newborn pamphlet in English and Spanish, and printable checklists for your baby’s doctor visits.
Support & Services
A national parent-run network that connects families with others at the same stage, from diagnosis through age 3.
Support & Services
A national center that publishes medically reviewed, balanced booklets for families who have just received a genetic diagnosis, including Down syndrome.
Guide
A warm, practical booklet for parents expecting a baby with Down syndrome: tests, first feelings, telling family and friends, and life ahead.
Clinical Guideline
The National Society of Genetic Counselors’ guideline on how to share a Down syndrome diagnosis with families, before or after birth.
