Inspired by Charlotte Woodward’s inspiring journey In June 2012, at just 22 years old, Charlotte Woodward—a young woman born with Down syndrome—received a donor heart after enduring four open-heart surgeries by age 10. Thirteen years later, she is thriving: dancing, learning guitar, earning a magna cum laude degree in sociology from George Mason University, and working as an advocate at the National Down Syndrome Society (NDSS) thearc.org+4people.com+4ndss.org+4. The Unspoken Barrier Despite Charlotte’s success, systemic biases linger in the organ transplant system. Studies show that over 40% of pediatric transplant centers regard intellectual disabilities as a red flag ndss.org+3people.com+3en.wikipedia.org+3. Among adults… Read more: A New Campaign for Transplant Equity

In today’s digital world, screens are everywhere. From the TV in the living room to the tablet in a child’s hands, managing screen time is a hot topic for all parents. For children with Down syndrome, finding the right balance can feel particularly important, as we navigate their unique learning styles, developmental needs, and potential vulnerabilities. So, how much iPad and TV time should kids with Down syndrome have? The answer, like with many parenting questions, is: it’s complicated, but a healthy balance is key. General Guidelines as a Starting Point Most of us have heard general screen time recommendations… Read more: Navigating Screens: A Parent’s Guide to iPad and TV Time for Kids with Down Syndrome

Summer camp – the words alone can conjure images of new friendships, outdoor adventures, silly songs, and lifelong memories. Juliette has been going to camps for several years and as she approaches her 9th birthday, her parents have a host of day-camp experiences prepared for her. For children with Down syndrome, camp offers these same incredible opportunities for growth, independence, and fun. With thoughtful preparation, you can help ensure your child has a positive and rewarding experience. The key to a successful camp adventure lies in planning and open communication. Whether it’s a day camp down the street or a… Read more: Adventure Awaits: A Parent’s Guide to Camp Prep for Children with Down Syndrome

School’s out! Lazy mornings, sunny afternoons, and family adventures are on the horizon. But for parents of children with Down syndrome, the long summer break can also bring a question: how do we keep our kids learning, engaged, and moving forward when the structured school day disappears? The “summer slide”—where children can lose some of the academic gains made during the school year—is a concern for many parents. For children with Down syndrome, who often thrive on routine and consistent reinforcement, maintaining skills and fostering new growth over the summer is particularly important. The good news is that summer doesn’t… Read more: Summer Forward: Keeping Your Child with Down Syndrome Engaged and Growing

Explaining complex and challenging topics like violence and war to children can be a daunting task for any parent. When it comes to children with Down syndrome, it’s essential to approach these discussions with care, sensitivity, and age-appropriate language. Parents often wonder how to navigate these conversations and provide a clear understanding without causing unnecessary distress. Let’s explore some basic strategies to help you navigate this topic with children who have Down syndrome, while taking their unique needs and characteristics into account. Please note that this discussion and the included references are intended as an overview of approaches for discussing… Read more: Explaining Violence and War to Children with Down Syndrome