I remember one day wearing a “Down Right Perfect” t-shirt as I marched up to the high school doors to collect Wil after school hours because he had run from getting on the bus. He booked it up the steps to the second floor and hid. Once he was found, Mr. Walsh walked him down… Read more: Parenting: Proactive Coordination & Gratitude for What Is

A singular new word Wil calmly adds to his vocabulary, in a such a way that only I — or his closest educators — would hear stands out like a stacatto flashing me back in time to a movie reel loop when he was 5 or 7 or 10, working a skill on a repeat… Read more: The Paradox of Parenting a Down Syndrome Child

A look back at the history of our understanding about the elements that so mix to create a person with Down syndrome is both heartbreaking and hopeful as we see how it’s possible for attitudes to change with knowledge and understanding.

Wil has a very set — and happy — routine in the morning. His alarm goes off, I go to his room, sing him a song and give him a hug (definitely a daily stop and smell the roses moment for me — making time for songs and hugs are Wil’s priorities and remind me… Read more: Routine

Our Human Services leader is telling us to be weak. To be devasted by a diagnosis. To feel damaged because our children are neurodiverse and may not pay taxes. I was devastated but I CHOSE to RISE! I CHOSE to love my child for who they were and to find others that gave me strength… Read more: Rise!